The celebs shared this emotional video of 4-year-old Charlotte and her 2-year-old sister, Gwenyth Gray. Their dad, movie producer Gordon Gray (“Rookie” and “Miracle”) has enlisted his famous friends to help raise awareness, and the $10 million needed to fund research for a cure.
"You're looking at your very healthy vibrant children, who are loving life right now, who could potentially lose all of that joy in a very short time," Gray's wife Kristen says in the above video.
Kids who are diagnosed with Batten disease live the first few years of their lives normally before symptoms begin. According to Batten Disease Support and Research Association, symptoms can vary tremendously for each person, but they can suffer from seizures, blindness, loss of motor skills and the ability to walk and talk. Sadly, until more strides are made in research, treatment and cures, Batten results in early death.
Celebs began posting the video to their social media pages using the #CureBatten hashtag.
Channing Tatum wrote on Facebook, “I challenge you guys to give $1 to the Charlotte & Gwenyth Gray Foundation to help #CureBatten disease and save young lives. Help me spread the word.”
Jessica Alba tweeted, “Let's #CureBatten together!! Please join me in donating to @curebatten because every $ helps kids live.”
Dwayne Johnson helped spread the word by posting: “I've never asked for donations, but this one's very close to my heart. Watch this video and if you can give $1 to the Charlotte & Gwenyth Gray Foundation - that would be amazing and mean the world to us. Thank y'all so much and maybe together, we can help cure Batten disease and save children’s lives.”
Kristen Gray stated in the video, "We have a very short window to try and save them. All I ever wanted to do was be a mom and to think that that could be taken away from me with both my children is devastating."
IfOnly.com has teamed up with The Charlotte and Gwenyth Gray Foundation to help raise the 10 million dollars. Through IfOnly.com's unique platform, which offers once in a lifetime experiences with proceeds going to various charitable causes, the world can join in helping to save these lives. Some offerings include joining The Rock for "San Andreas," the incredible ESPN Stanley Cup package and the latest, premiere tickets to "Ted 2."
In addition the site will be launching a collection of offerings in entertainment, sports and music in a Cure Batten shop. If just a fraction donate or bid on the many items that will be in the Cure Batten shop we will have a fighting chance at finding a cure.
Learn more about Batten disease, and how you can spread the word and donate here: CureBatten.org, and for more information on ifOnly.com, click here.